Care demands of children with type 1 Diabetes Mellitus
La demanda de cuidado de los niños con diabetes mellitus tipo 1
As demandas de cuidado das crianças com Diabetes Mellitus tipo 1
Aline Cristiane Cavicchioli Okido; Aline de Almeida; Mahyra Medeiros Vieira; Eliane Tatsch Neves; Débora Falleiros de Mello; Regina Aparecida Garcia Lima
Abstract
Objective: To know the experience of families in caring for children with Diabetes Mellitus Type 1.
Methods: Descriptive and exploratory study with a qualitative approach. For the production of empirical material, it was developed open interview with thirteen relatives. The analysis took place according to the process of inductive thematic content analysis. It was used the framework of family-centered care as a driver of the analysis.
Results: It were categorized in two themes: the family role facing the demand for modified usual care; and insulin therapy in the family's daily lives.
Conclusions and implications for the practice: The experience of time with the disease coupled with support structures, commitment and perseverance from the families potentiate the management of chronic disease in childhood. It is suggested the reorganization of health services seeking to develop a care based on the concept of care centered on the family.
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Resumen
Palabras clave
Resumo
Objetivo: Conhecer a experiência de famílias no cuidado às crianças com Diabetes Mellitus tipo 1.
Métodos: Estudo descritivo e exploratório com abordagem qualitativa. Para a produção do material empírico desenvolveu-se entrevista aberta com 13 familiares. A análise ocorreu segundo o processo de análise de conteúdo do tipo temática indutiva. Utilizou-se o referencial do Cuidado Centrado na Família como condutor da análise.
Resultados: Foram categorizados em dois temas: a família diante da demanda de cuidado habitual modificado e a insulinoterapia no cotidiano das famílias.
Conclusões e implicações para a prática: Conclui-se que o tempo de vivência com a doença aliado às estruturas de apoio, empenho e perseverança das famílias potencializam o manejo da doença crônica na infância. Sugere-se a reorganização dos serviços de saúde buscando o desenvolvimento de um cuidado pautado na concepção de cuidado centrado na família.
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References
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Submitted date:
10/10/2016
Accepted date:
02/03/2017
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