Quality of life among children with cancer: agreement between child and parent reports
Calidad de vida de niños con cáncer: concordancia entre niños y padres
Qualidade de vida em crianças com câncer: concordância entre crianças e pais
Luís Manuel Cunha Batalha; Ananda Maria Fernandes; Catarina de Campos
Abstract
Objective: To describe the health-related quality of life (HRQoL) among children with cancer; assess agreement between self and proxy-report and identify influencing factors of the differences in self and proxy-report.
Methods: A descriptive cross-sectional study was conducted in two pediatric oncology units of two Portuguese hospitals. The study involved hospitalized children with cancer (8-17 years old) and their parents.
Results: The child's perception of their HRQoL was 66.0 ± 13.3 and parents' perception scored 60.3 ± 15.0. The agreement between self and proxy-report was moderate (strong association). Variables related to the child's age, gender, type of tumor, time elapsed since diagnosis and number of hospitalizations did not influence the differences between self and proxy-report.
Conclusion: An intervention with more support should be made in the resolution of concerns, management of pain and discomfort in children and reduce parental anxiety. It is necessary to clarify the influence of the factors that influence the differences between self and proxy-report.
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Resumen
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Resumo
Objetivo: Descrever a qualidade de vida relacionada com a saúde (QVRS) de crianças com câncer; avaliar a concordância entre auto e heterorrelato; e identificar fatores influenciadores das divergências no auto e heterorrelato.
Métodos: Estudo descritivo e transversal desenvolvido em dois serviços oncológicos pediátricos de dois hospitais Portugueses que envolveram crianças com cancro (8-17 anos) e seus pais.
Resultados: A percepção da criança da sua QVRS foi de 66,0 ± 13,3 e a dos pais de 60,3 ± 15,0. A concordância entre auto e heterorrelato foi moderada, sendo a associação forte. Variáveis relacionadas com a idade da criança, sexo, tipo de tumor tempo de diagnóstico e número de internamentos não influenciaram as divergências entre o auto e heterorrelato.
Conclusão: Uma intervenção com mais apoio deve ser realizada na resolução das preocupações, gestão da dor e desconforto da criança e redução da ansiedade dos pais. É necessário esclarecer a influência dos fatores que influenciam as divergências entre o auto e heterorrelato.
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Referências
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Submetido em:
06/08/2014
Aceito em:
08/04/2015
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