Escola Anna Nery Revista de Enfermagem
https://app.periodikos.com.br/journal/ean/article/doi/10.1590/2177-9465-EAN-2017-0178
Escola Anna Nery Revista de Enfermagem
Pesquisa

Uncertainties of mothers of children in conservative renal treatment

Incertidumbres de madres de niños en tratamiento conservador renal

Incertezas de mães de crianças em tratamento conservador renal  

Fernanda Lise; Eda Schwartz; Viviane Marten Milbrath; Diana Cristiano Castelblanco; Margareth Angelo; Raquel Pötter Garcia

http://dx.doi.org/10.1590/2177-9465-EAN-2017-0178 Esc. Anna Nery, vol.22, n2, e20170178, 2018
PDF English
PDF Português
SciELO
Downloads: 0
Views: 3

Abstract

Objective: To understand the uncertainties of mothers of children undergoing conservative renal treatment due to the child's illness.

Method: A qualitative study was carried out with 11 mothers of children undergoing conservative renal treatment at a pediatric nephrology service in the southern region of Brazil. For the data collection, a semi-structured interview and conventional content analysis were performed.

Results: Two categories of statements emerged: "Uncertainties regarding the disease and adaptation methods" and "Experiencing unpredictability". The uncertainties were due to the ambiguity of the symptoms and reasons for the development of the disease, lack of information, clarity and unpredictability in relation to the future.

Conclusion and implications for practice: Faced with uncertainties, mothers seek to maintain emotional balance, but need support from the healthcare team and nursing team, in primary health care, in order to promote , assurance by giving clear information on how this process occurs, reducing anxiety regarding the unpredictability of the disease in the future.

Keywords

Life Change Events; Child; Nursing; Uncertainty; Renal Insufficiency, Chronic

Resumen

Objetivo: Conocer las incertidumbres de madres de niños en tratamiento conservador renal debido al proceso de enfermedad del hijo.

Método: Estudio cualitativo, realizado con 11 madres en un servicio de nefrología pediátrica de la región Sur de Brasil. Se realizó una entrevista semiestructurada y Análisis de Contenido convencional.

Resultados: Emergieron dos categorías de testimonios: "Incertidumbres en la enfermedad y formas de adaptación" y "Viviendo la imprevisibilidad". Las incertidumbres fueron consecuencia de la ambigüedad de los síntomas y motivos del desarrollo de la enfermedad, falta de información, aclaraciones e imprevisibilidades en relación al futuro.

Conclusión e implicaciones para la práctica: Las madres buscan el mantenimiento del equilibrio emocional, pero necesitan de amparo del equipo de salud y de la Enfermería, en la atención primaria a la salud, para promover la seguridad, con informaciones esclarecidas sobre cómo se dará este proceso, disminuyendo la ansiedad en relación a la imprevisibilidad de la enfermedad.

Palabras clave

Acontecimientos que Cambian la Vida; Niño; Enfermería; Incertidumbre; Insuficiencia Renal Crónica

Resumo

Objetivo: Conhecer as incertezas de mães de crianças em tratamento conservador renal decorrentes do processo de adoecimento do filho.

Método: Estudo qualitativo, realizado com 11 mães de crianças em tratamento conservador renal em um serviço de nefrologia pediátrica da região Sul do Brasil. Para a coleta dos dados realizou-se entrevista semiestruturada e Análise de Conteúdo convencional.

Resultados: Emergiram duas categorias de depoimentos: "Incertezas na doença e formas de adaptação" e "Vivendo a imprevisibilidade". As incertezas foram decorrentes da ambiguidade dos sintomas e motivos do desenvolvimento da enfermidade, falta de informação, clareza e imprevisibilidade em relação ao futuro.

Conclusão e implicações para a prática: Diante de incertezas, as mães buscam a manutenção do equilíbrio emocional, porém necessitam de amparo da equipe de saúde e a Enfermagem, na atenção primária à saúde, para promover a segurança, com informações claras sobre como se dará esse processo, diminuindo os anseios em relação à imprevisibilidade da doença no futuro.

Palavras-chave

Acontecimentos que mudam a vida; Criança; Enfermagem; Incerteza; Insuficiência renal crônica

Referências

1 Mishel MH. Uncertainty in illness. J Nurs Sch [Internet]. 1988 Dec; [cited 2016 Sep 2]; 20(4):225-32. Available from: http://onlinelibrary.wiley.com/doi/10.1111/j.1547-5069.1988.tb00082.x/pdf. DOI: 10.1111/j.1547-5069.1988.tb00082.x

2 Lise F, Schwartz E, Milbrath VM, Santos BP, Garcia RP, Feijó AM. Criança em tratamento conservador renal: experiências das cuidadoras familiares. Texto Contexto Enferm [Internet]. 2017 Aug; [cited 2016 Sep 20]; 26(3):e1110016. Available from: http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0104-07072017000300308&lng=pt&tlng=pt

3 Denham SA, Eggenberger S, Young P, Krumwiede N. Family-focused nursing care. 1st ed. Philadelphia: FA Davis; 2015. 448 p.

4 He S, Yo LM, Zheng J, Bi YL. Uncertainty and personal growth through positive coping strategies among Chinese parents of children with acute leukemia. Cancer Nurs [Internet]. 2016 May/Jun; [cited 2016 Sep 2]; 9(3):205-12. Available from: https://journals.lww.com/cancernursingonline/Abstract/2016/05000/Uncertainty_and_Personal_Growth_Through_Positive.7.aspx

5 Chaney JM, Gamwell KL, Baraldi AN, Ramsey RR, Cushing CC, Mullins AJ, et al. Parent perceptions of illness uncertainty and child depressive symptoms in juvenile rheumatic diseases: examining caregiver demand and parent distress as mediators. J Pediatr Psychol [Internet]. 2016 Oct; [cited 2016 Sep 2]: 41(9):941-51. Available from: https://www.ncbi.nlm.nih.gov/pubmed/26896507

6 Tackett AP, Cushing CC , Suorsa KI, Mullins AJ , Gamwell KL , Mayes S, et al. Illness Uncertainty, global psychological distress, and posttraumatic stress in pediatric cancer: a preliminary examination using a path analysis approach. J Pediatr Psychol [Internet]. 2016 Apr; [cited 2016 Sep 2]; 41(3):309-18. Available from: https://academic.oup.com/jpepsy/article/41/3/309/2579855. DOI: 10.1093/jpepsy/jsv093

7 Gondim KM, Carvalho ZMF. Sentimentos das mães de crianças com paralisia cerebral à luz da teoria de Mishel. Esc Anna Nery [Internet]. 2012 Jan/Mar; [cited 2016 Sep 10]; 16(1):11-6. Available from: http://eean.edu.br/default.asp?ed=29. DOI: 10.1590/S1414-81452012000100002

8 Li TY, Lo JL. The predictors of uncertainty in mothers of children with autism spectrum disorder. Child Health Care [Internet]. 2016; [cited 2016 Sep 2]; 45(2):147-64. Available from: http://www.tandfonline.com/doi/abs/10.1080/02739615.2014.979924. DOI: 10.1080/02739615.2014.979924

9 Lin L, Yeh CH, Mishel MH. Evaluation of a conceptual model based on Mishel's theories of uncertainty in illness in a sample of Taiwanese parents of children with cancer: a cross-sectional questionnaire survey. Int J Nurs Stud [Internet]. 2010 Dec; [cited 2016 Sep 4]; 47(12):1510-24. Available from: https://www.ncbi.nlm.nih.gov/pubmed/?term=Evaluation+of+a+conceptual+model+based+on+Mishel's+theories+of+uncertainty+in+illness+in+a+sample+of+Taiwanese+parents+of+children+with+cancer%3A+a+cross-sectional+questionnaire+survey

10 Stewart JL, Lynn MR, Mishel MH. Psychometric evaluation of a new instrument to measure uncertainty in children with cancer. Nurs Res [Internet]. 2010 Mar/Apr; [cited 2016 Sep 2]; 59(2):119-26. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2870996/. DOI: 10.1097/NNR.0b013e3181d1a8d5

11 Truitt M, Biesecker B, Capone G, Bailey T, Erby L. The role of hope in adaptation to uncertainty: the experience of caregivers of children with Down Syndrome. Patient Educ Couns [Internet]. 2012 May; [cited 2016 Sep 20]; 87(2):233-8. Available from: http://www.pec-journal.com/article/S0738-3991(11)00466-6/pdf. DOI: 10.1016/j.pec.2011.08.015

12 Khatun S, Kim HS, Park HB. Factors affecting maternal coping in Korean mothers of children with cancer. Open J Nurs [Internet]. 2016; [cited 2016 Sep 16]; 6:751-66. Available from: http://file.scirp.org/pdf/OJN_2016092116465192.pdf. DOI: 10.4236/ojn.2016.69076

13 Angelo M, Moreira PL, Rodrigues LMA. Incertezas diante do câncer infantil: compreendendo as necessidades da mãe. Esc Anna Nery [Internet]. 2010 Abr/Jun; [cited 2016 Sep 16]; 14(2):301-8. Available from: http://www.scielo.br/pdf/ean/v14n2/12.pdf. DOI: 10.1590/S1414-81452010000200013

14 Jackson JB, Roper SO. Parental adaptation to out-of-home placement of a child with severe or profound developmental disabilities. Am J Intellect Dev Disabil [Internet]. 2014 May; [cited 2016 Sep 16]; 119(3):203-19. Available from: http://aaiddjournals.org/doi/pdf/10.1352/1944-7558-119.3.203. DOI: 10.1352/1944-7558-119.3.203

15 Pereira-Silva NL, Almeida BR. Reações, sentimentos e expectativas de famílias de pessoas com necessidades educacionais especiais. Psicol Argum [Internet]. 2014; [cited 2016 Sep 16]; 32(79 Supl 2):111-22. Available from: http://www2.pucpr.br/reol/pb/index.php/pa?dd99=issue&dd0=588. DOI: 10.7213/psicol.argum.32.s02.AO10

16 Morrison CF, Szulczewski L, Strahlendorf LF, Lane JB, Mullins LL, Pai AL. Designing technology to address parent uncertainty in childhood cancer. ANS Adv Nurs Sci [Internet]. 2016 Jan/Mar; [cited 2016 Sep 2]; 39(1):15-25. Available from: https://www.ncbi.nlm.nih.gov/pubmed/26836990

17 Mishel MH. The measurement of uncertainty in illness. Nurs Res [Internet]. 1981 Sep/Oct; [cited 2016 Sep 20]; 30(5):258-63. Available from: http://journals.lww.com/nursingresearchonline/Citation/1981/09000/The_Measurement_of_Uncertainty_in_Illness.2.aspx

18 Hsieh HF, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res [Internet]. 2005 Nov; [cited 2016 Sep 16]; 15(9):1277-88. Available from: http://journals.sagepub.com/doi/abs/10.1177/1049732305276687

19 Ministério da Saúde (BR). Resolução Nº. 466 de 12 de dezembro de 2012. Conselho Nacional de Saúde. Brasília (DF): Ministério da Saúde; 2012 [cited 2015 Oct. 4]. Available from: http://www.conselho.saude.gov.br/web_comissoes/conep/index.html

20 Nóbrega VM, Reichert APS, Silva KL, Coutinho SED, Collet N. Imposições e conflitos no cotidiano das famílias de crianças com doença crônica. Esc Anna Nery [Internet]. 2012 Oct/Dec; [cited 2016 Sep 20]; 16(4):781-8. Available from: http://www.scielo.br/pdf/ean/v16n4/20.pdf. DOI: 10.1590/S1414-81452012000400020

21 Arruda-Colli MNF, Perina EM, Santos MA. Experiences of Brazilian children and family caregivers facing the recurrence of cancer. Eur J Oncol Nurs [Internet]. 2015 Oct; [cited 2016 Sep 2]; 19(5):458-64. Available from: http://www.ejoncologynursing.com/article/S1462-3889(15)00025-3/pdf. DOI: 10.1016/j.ejon.2015.02.004

22 Heydari A, Shahidi LH, Mohammadpuor A. Spiritual journey in mothers' lived experiences of caring for children with autism spectrum disorders. Glob J Health Sci [Internet]. 2015 Mar; [cited 2016 Sep 20]; 7(6):79-87. Available from: http://www.ccsenet.org/journal/index.php/gjhs/article/view/43976/25412. DOI: 10.5539/gjhs.v7n6p79
 

Submetido em:
21/07/2017

Aceito em:
07/03/2018

68236d31a9539523c678a835 ean Articles
2177-9465 (Eletrônico) 1414-8145 (Impresso)
Esc. Anna Nery ©2025 Todos os direitos reservados.

Esc. Anna Nery

Share this page
Page Sections