Translation and cultural adaptation of the Needs of Parents Questionnaire (NPQ) to be used in Brazil
Traducción y adaptación cultural del Needs of Parents Questionnaire (NPQ) para uso en Brasil
Tradução e adaptação cultural do Needs of Parents Questionnaire (NPQ) para uso no Brasil
Rosyan Carvalho Andrade; Ana Carolina Andrade Biaggi Leite; Willyane de Andrade Alvarenga; Rafael Rozeta Martimiano; Claudia Benedita dos Santos; Lucila Castanheira Nascimento
Abstract
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Objetivo: Realizar a tradução, adaptação cultural e avaliação da consistência interna da versão adaptada do Needs of Parents Questionnaire (NPQ) em amostra de pais de crianças hospitalizadas no Brasil.
Método: Estudo metodológico, fundamentado essencialmente no método DISABKIDS®, desenvolvido em hospital público universitário. Foram realizadas as etapas de tradução, avaliação por um comitê de especialistas, retrotradução, validação semântica e estudo-piloto.
Resultados: Após os processos de tradução e retrotradução do instrumento original para o português do Brasil, procedeu-se à validação semântica com 30 pais, tendo sido realizadas adequações até que a versão traduzida fosse considerada compreensível pela maioria dos participantes. Na sequência, realizou-se estudo-piloto com outros 59 pais, cujos valores da consistência interna foram satisfatórios.
Conclusões: O NPQ adaptado para o Brasil mostrou-se confiável e, após avaliação de outras propriedades psicométricas no estudo de campo, poderá ser útil para avaliar as necessidades de pais de crianças hospitalizadas, qualificando o cuidado de enfermagem.
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1 Burns-Nader S, Hernandez-Reif M, Porter M. The relationship between mothers' coping patterns and children's anxiety about their hospitalization as reflected in drawings. J Child Health Care [Internet]. 2014 Mar; [cited 2015 Jan 22]; 18(1):6-18. Available from:
2 Walker-Vischer L, Hill C, Mendez SS. The experience of latino parents of hospitalized children during family-centered rounds. J Nurs Adm [Internet]. 2015 Mar; [cited 2016 Jul 13]; 45(3):152-7. Available from:
3 Feeg VD, Paraszczuk AM, Çavuşoğlu H, Shields L, Pars H, Al Mamun A. How Is Family Centered Care Perceived By Health Care Providers From Different Countries? An International Comparison. J Pediatr Nurs [Internet]. 2016 May/Jun; [cited 2016 Aug 23]; 31(3):267-76. Available from:
4 Foster MJ, Whitehead L, Maybee P, Cullens V. The Parents', Hospitalized Child's, and Health Care Providers' Perceptions and Experiences of Family Centered Care Within a Pediatric Critical Care Setting. J Fam Nurs [Internet]. 2013 Jul; [cited 2017 Aug 22]; 19(4):431-68. Available from:
5 Zhou H, Shields L, Watts R, Taylor M, Munns A, Ngune I. Family-centred care for hospitalized children aged 0-12 years: A systematic review of qualitative studies. JBI Libr Syst Rev. [Internet]. 2012; [cited 2015 Jan 20]; 10(57):3917-35. Available from:
6 Andrade RC, Marques AR, Leite ACAB, Martimiano RR, Santos BD, Pan R, et al. The needs of parents of hospitalized children: evidence for care. Rev Eletr Enferm [Internet]. 2015 Abr/Jun; [cited 2017 Oct 24]; 17(2):379-94. Available from:
7 Jones J, Nowacki AS, Greene A, Traul C, Goldfarb J. Investigating Parent Needs, Participation, and Psychological Distress in the Children's Hospital. Hosp Pediatr [Internet]. 2017 Jul; [cited 2017 Aug 22]; 7(7):385-94. Available from:
8 Bedells E, Bevan A. Roles of nurses and parents caring for hospitalized children. Nurs Child Young People [Internet]. 2016 Mar; [cited 2017 Jan 20]; 28(2):24-8. Available from:
9 Davies R. Marking the 50th anniversary of the Platt Report: from exclusion, to toleration and parental participation in the care of the hospitalized child. J Child Health Care [Internet]. 2010 Mar; [cited 2015 Jan 20]; 14(1):6-23. Available from:
10 Ministry of Health. Central Health Services Council. The Welfare of Children in Hospital. (The Platt Report). London: Her Majesty's Stationery Office; 1959.
11 Ministério da Saúde (BR). Estatuto da Criança e do Adolescente. 3ª ed. Brasília (DF): Ministério da Saúde; 2008. Available from:
12 Majdalani MN, Doumit MA, Rahi AC. The lived experience of parents of children admitted to the pediatric intensive care unit in Lebanon. Int J Nurs Stud [Internet]. 2014 Feb; [cited 2015 Jul 24]; 51(2):217-25. Available from:
13 Streiner DL, Kottner J. Recommendations for reporting the results of studies of instrument and scale development and testing. J Adv Nurs [Internet]. 2014 Sep; [cited 2015 Feb 13]; 70(9):1970-9. Available from:
14 McClimans L, Browne J, Cano S. Clinical outcome measurement: Models, theory, psychometrics and practice. Stud Hist Philos Biol Biomed Sci [Internet]. 2017 Jul; [cited 2017 Aug 22]; 1-7. In press. Available from:
15 Bragadóttir H. A descriptive study of the extent to which self-perceived needs of parents are met in paediatric units in Iceland. Scand J Caring Sci [Internet]. 1999; [cited 2014 Jul 23]; 13(3):201-7. Available from:
16 Kristjánsdóttir G. A study of the needs of parents of hospitalized 2- to 6-year-old children. Issues Compr Pediatr Nurs [Internet]. 1991 Jan/Mar; [cited 2014 Jul 23]; 14(1):49-64. Available from:
17 Kristjánsdóttir G. Perceived importance of needs expressed by parents of hospitalized two- to six-year-olds. Scand J Caring Sci [Internet]. 1995 Jun; [cited 2014 Jul 23]; 9(2):95-103. Available from:
18 Shields L, Kristensson-Hallström I, O'Callaghan M. An examination of the needs of parents of hospitalized children: comparing parents' and staff's perceptions. Scand J Caring Sci [Internet]. 2003 Jun; [cited 2015 Jan 22]; 17(2):176-84. Available from:
19 Shields L, Hunter J, Hall J. Parents' and staff's perceptions of parental needs during a child's admission to hospital: an English perspective. J Child Health Care [Internet]. 2004 Mar; [cited 2015 Jan 22]; 8(1):9-33. Available from:
20 Shields L, Young J, McCann D. The needs of parents of hospitalized children in Australia. J Child Health Care [Internet]. 2008 Mar; [cited 2015 Jan 22]; 12(1):60-75. Available from:
21 Kyritsi H, Matiziou V, Perdikaris P, Evagelou H. Parents' needs during their child's hospitalization. Nursing Gr. 2005; [cited 2015 Jan 22]; 23:1-9.
22 Söderbäck M, Christensson K. Family involvement in the care of a hospitalised child: a questionnaire survey of Mozambican family caregivers. Int J Nurs Stud [Internet]. 2008 Dec; [cited 2015 Jan 22]; 45(12):1778-88. Available from:
23 Ferreira PL, Melo E, Reis G, Mello DF. Validação e análise da precisão da versão em português do Needs of Parents Questionnaire. J Pediatr [Internet]. 2010 Jun; [cited 2016 Oct 19]; 86(3):221-7. Available from:
24 Reis GMR. Expectativas dos pais durante a hospitalização da criança [dissertação]. Porto: Universidade do Porto; 2007.
25 Disabkids® Group. The Kidscreen/Disabkids® Project; 2015. [cited 2015 Mar 14]. Available from:
26 Guillemin F, Bombardier C, Beaton D. Cross-cultural adaptation of health-related quality of life measures: Literature review and proposed guidelines. J Clin Epidemiol [Internet]. 1993 Dec; [cited 2013 Aug 10]; 46(12):1417-32. Available from:
27 Beaton DE, Bombardier C, Guillemin F, Ferraz MB. Guidelines for the process of cross-cultural adaptation of self-report measures. Spine (Phila Pa 1976) [Internet]. 2000 Dec 15; [cited 2013 Aug 10]; 25(24):3186-91. Available from:
28 Pasquali L. Psicometria. Rev Esc Enferm [Internet]. 2009 Dec; [cited 2016 Jan 15]; 43(no.spe):992-9. Available from:
29 Fegadolli C, Reis RA, Martins STA, Bullinger M, Santos CB. Adaptation of the generic DISABKIDS® module for Brazilian children and adolescents with chronic disorders. Rev Bras Saúde Mater Infant [Internet]. 2010 Jan/Mar; [cited 2016 Jan 15]; 10(1):95-105. Available from:
30 DISABKIDS® Group. Translation and validation procedure: guidelines and documentation form. Leiden: The DISABKIDS® Group; 2004. [cited 2016 Jan 15]. Available from:
31 Sapnas KG, Zeller RA. Minimizing sample size when using exploratory factor analysis for measurement. J Nurs Meas [Internet]. 2002 Fall; [cited 2015 Jan 22]; 10(2):135-54. Available from:
32 Fayers PM, Machin D. Quality of life: the assessment, analysis, and interpretation of patient-reported outcomes. 2nd ed. New York: John Wiley & Sons; 2007. 544 p.
33 Dias AS, Vendramini CMM. Full information Factorial Analysis of a Reading Comprehension Test in Statistics. Psicol Esc Educ [Internet]. 2008 Dec; [cited 2014 Jul 13]; 12(2):357-67. Available from:
34 Terwee CB, Bot SD, de Boer MR, van der Windt DA, Knol DL, Dekker J, et al. Quality criteria were proposed for measurement properties of health status questionnaires. J Clin Epidemiol. [Internet]. 2007 Jan; [cited 2016 Jan 29]; 60(1):34-42. Available from:
35 Poli-Neto OB, Chama PPF, Romão APMS, Dantas RAS, Rosa-e-Silva JC, Candido-dos-Reis FJ, et al. Cultural Adaptation of the Patient Satisfaction Questionnaire and Validation of Its Use in the Portuguese Language for Women with Chronic Pelvic Pain. Rev Bras Ginecol Obstet [Internet]. 2016 Sep; [cited 2017 Aug 22]; 38(9):443-9. Available from:
36 Sousa VD, Rojjanasrirat W. Translation, adaptation and validation of instruments or scales for use in cross-cultural health care research: a clear and user-friendly guideline. J Eval Clin Pract [Internet]. 2011 Apr; [cited 2017 Oct 24]; 17(2):268-74. Available from:
37 Instituto Brasileiro de Geografia e Estatística (BR). Educação: Brasil em síntese. Brasil, 2007-2014. Rio de Janeiro: IBGE; 2016 [cited 2017 Oct 25]. Available from:
Submitted date:
05/11/2017
Accepted date:
09/23/2017
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